Annalise’s Kidney Abnormality: Part V

Last time on this topic, we left off after Annalise’s surgery. We were heading home from the hospital, relieved that it was all over. But the appointments with the doctors didn’t stop after surgery…

Annalise had recovered so well in the hospital. At almost 8 months old, she bounced back like they said she would. Besides a slight favoring of her abdomen, I really couldn’t tell a difference. We headed home, on Thanksgiving night. Our home was so much more relaxing than the pediatric unit at UVA Hospital. Don’t get me wrong – the nurses and doctors were great…but nothing beats sitting on your own couch and NOT sleeping on a recliner.

That evening, Annalise started to spike a fever. She went to bed fine, with tylenol, but she was restless throughout the night. Annalise is extremely cold-natured, and rarely ever gets a fever. It was so weird to touch her head and pull back from the heat. We called the doctors at UVA when her fever reached over 101, and they said it was normal to spike a fever post-operation. They weren’t worried, unless she showed other signs or the fever lasted more than 24 hours.

The following day was Friday, and Annalise and I were both cranky from little sleep. But what did I do? I wanted to roast a turkey for the three of us (yes, my 8 month old ate table food…another post to come about all that). Thanksgiving is my favorite holiday, and we were having turkey. Screw my exhaustion. I need turkey. And mashed potatoes. And pumpkin pie. Annalise’s fever started to subside that evening, and was completely gone the next (Saturday) morning. Oh and did I mention? That day was my birthday. Happy birthday, to me…right? I’ve had better days. Probably every other day that year.

So two weeks later we were back at UVA for Annalise’s out-patient surgery to remove the stint. If you remember, there was a slight complication during her kidney removal. Her healthy ureter must have been nicked during the surgery, so they put in a stint to help it heal. The procedure itself lasted 5 minutes – literally just using tweezers to pull out the stint through her bladder. But she still had to go through all the pre-op fasting, prep, IV, and anesthesia. Thankfully, it all went smoothly (aside from the fact that we didn’t know where the out-patient surgery was). And the pediatric urologist did get to look Annalise over. He was pleased with how her incisions were healing…awesome. And we were home in time for a morning nap, and we all Annalise slept wonderfully.

Six weeks from the first surgery in November, we headed to the pediatric urology clinic for our first follow-up. Annalise was now 9 months old, and the surgery seemed like a distant memory. We had stopped giving her daily dose of antibiotics (as a preventative for infection), which was weird for all of us. Since Annalise was just two months old, her  “candy” in a dropper became part of our life. One day, we just stopped (with our doctor’s approval). And life got simpler.

In the clinic, Annalise had to give another pee sample, and have another ultrasound on her abdomen. It wasn’t as easy this time, since Annalise was now crawling and much more agile. But we got through it, and the pediatric urologist confirmed that everything looked great! And great, meaning that all of the dysfunctional part of her kidney was removed. And the kidney and ureter was healing normally. Next appointment scheduled in 6 months.

So as I’m writing this, we had her 6 month post-op checkup a month ago. Same routine: pee sample and ultrasound. But this time, Annalise is a walker/runner/mover/shaker. I felt less like a mom and more like a lion tamer. But armed with a bag of grapes, she held still long enough for a few ultrasound pictures. And everything looked good – the kidney was actually beginning to regenerate and grow. Good signs. And now we’ll head back a year from now.

As Annalise grows, we’ll probably have yearly appointments for follow-up (pending no infections or complications). Basically, she is doing most of her growing right in these few years. So the pediatric urologist wants to watch this kidney as it grows. Eventually, if everything continues to heal and grow as it should, the doctor will stop seeing Annalise. They will assume that after several years of monitoring, her kidney will continue to grow and function normally. So lets just hope for that!

Of course, I plan to update this series if things change course. But as for now, we think that this is the end of the road with the kidney saga. Yes, there will be more follow-ups, more ultrasounds, and hopefully more good reports. Life post-surgery has been uneventful for us, thankfully. And it really wasn’t as bad as I thought it would be (but is anything, in hindsight?). Although, I bet I will still get lost in UVA’s west complex as I navigate the halls to the Pediatric Urology clinic. Let’s hope the new Children’s Hospital opens soon…and there’s a cafe close to the clinic!!!

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